Spotlight Saturday: Zoey

May 16, 2009

If this beautiful smile doesn't warm your heart, her amazing journey sure will:

"Zoey ... Greek in origin, meaning life. When we picked this name, actually our 8 year old did, we never could have imagined how perfect a name it would be. We named her at 25 weeks in my pregnancy and at that point knew of her cardiac issue and because of the type of defect, AV Canal Complete, that she would most likely be born with Down syndrome. She also arrived with Transient Myeloproliferative Disorder, a rare transient form of leukemia. We also found out on her fourth day of life that she had suffered a major stroke in utero. The effects of which are far reaching but she shows us daily how very capable and determined she is to over come them all. If all this were not enough, she was diagnosed in February 2008, with a catastrophic form of epilepsy referred to as Infantile Spasms or West Syndrome. She previously failed on two front line drugs to treat her spasms, Vigabatrin and ACTH. She is currently taking yet another seizure medication, Topamax and God willing, is in the process of successfully seeing herself through the worst of this latest obstacle placed before her. It has been determined that Zoey is a candidate for a hemispherectomy, removal of the right hemisphere of her brain, if her seizures return. We feel blessed and know she is one of the lucky ones to at least have this as an option if her seizures return and cannot be controlled once again. Many children do not. Zoey continues to amaze us each and everyday with her courage and resiliency.As one battle was won,yet another begins. On October the 29th 2008,our little fighter was diagnosed with AML M7, Acute Myelogenous Leukemia.We have to remain faithful she will conquer this as well.There can be no other way.So the fight continues."

Nothing can get cuter than this adorable girl and the cute pjs she often sports when in the hospital undergoing treatments. Make sure you stop by her family blog: Little Wonders and leave a note of encouragement or let them know you are praying for them. What a blessing that would be for them!!!

Father, let my children "make every effort to do what leads to peace" Rom. 14:19

No comments: